Monday, April 25, 2011

Itchy Itchy Itchy

Today is a new day and today is the day that I'm going to start making a HUGE change in my life....at least temporarily, if not for good.  I'm going gluten free.  Lemme explain here a bit as to why I am doing this.

For the past two months, I've been itchy.  Like really really itchy.  My arms, back, legs, chest, neck, ears have all been really itchy.  They are so itchy it's to the point that I'm scratching myself to bleeding.  I've been in and out of the doctors office's trying to find out what is causing this.  I've had blood taken, skin scraped, biopsies done, and we are no closer now to getting a diagnosis than we were 2 months ago when I first went in. 

A little over a week ago, my doctor gave me dapsone to see if that would help and it actually gave me relief.   It was nearly unbelievable that after 2 months of scratching, I wasn't scratching anymore!  Now that my biopsy came back negative though, I'm done with that prescription.  Slowly my itching is coming back.

There is a rash that was associated with this itch.  For a while we thought it was dermatitis herpetiformis aka the skin version of Celiacs disease.  The biopsy for that, however, came back negative.  Now I'm so lost and confused and frustrated.  I want to find out what's causing this.  I go to an allergist this week.  I'm really not sure what they will do and if they will have a better idea of what is going on.   My dermatologist wants to do the skin patch test on me in 2 weeks to find out what I am allergic to.  I just wish I knew if this would give me answers. 

I feel like I need to take my health into my own hands, at this point.  I am in need of figuring out what is going on with me, so I am going to do my work and start to eliminate things to see if they are the true cause of why this is happening.  Today I start that journey.  Today I am eliminating gluten. 

You may or may not have noticed that the posts have slowed over the past month.  It was just a rough month and I found it hard to do much of anything, including cooking.  I will get back to normal though.  Please stick with me!  I love you guys!  This week will most likely still be slow as I try to figure out what it is that I can and can not have.  I am thankful to have you loyal readers though, and hope that you'll stick around through this! 

4 comments:

  1. Oh I wish you all the luck in the world and hope you get your answers and relief soon! I can't even imagine! Take care!

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  2. Oh my goodness! While being gluten free would definitely be trying, it would be leaps and bounds better than being itchy all the time! Hoping that you soon get it figured out!!!

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  3. Well, macarons are gluten free, so you'll always be able to enjoy those.
    Best of luck with your allergy troubles!

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  4. sounds like exactly what my husband is going through. but everything comes back negative. did you ever find out what the rash is? we are so frustrated.

    erin

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